Living with ALS

When he was first diagnosed with ALS — amyotrophic lateral sclerosis, or Lou Gehrig's disease — on Dec. 6, 2010, Bruce Kramer was dean of the School of Education at the University of St. Thomas. He shared his journey with the incurable disease from time to time with MPR News Morning Edition host Cathy Wurzer.

Subscribe on Apple Podcasts, Google Podcasts , or RSS

Subscribe to Podcast
Bruce Kramer and his wife Ev Emerson discuss how their relationship has evolved as she has taken on the role of caregiver.
Bruce Kramer felt that the doctor who first told him that he had ALS did not deliver the devastating news with the proper compassion.
'Living While Dying' episode 20: Life becomes quieter
As ALS takes its toll on his body, Bruce Kramer decides that the time and energy required to go out and see friends is too great.
Bruce Kramer and Matthew Sanford of Mind/Body Solutions speak at an event at the University of St. Thomas. They talk about how all of our bodies are breaking down. They say it's important to embrace that reality rather than fight it.
Bruce Kramer responds to a series of articles in the New York Times which argue that suicide is a logical choice at the end of life.
In the fall of 2013, the losses from ALS, or "paper cuts," as Bruce Kramer called them, kept coming.
'Living While Dying' episode 16: Two pictures
Two recent photographs of Bruce Kramer illustrate his frame of mind.
Bruce Kramer faced some important decisions as his ALS progressed. He contemplated whether he should get a diaphragmatic pacing system, which would help him breathe. And he wondered about the value of checking things off a "bucket list."
'Living While Dying' episode 14: Drug trial ethics
Bruce Kramer believed that researchers need to rethink the way they test new drugs on ALS patients like him.